This has been a tough month with eye pain, I have missed a couple days of work and stayed in a dark room for days. It makes me nausiated and I’ve had a hard time keeping my Idebenone and vitamins down.
Yesterday, I realized I could see more than I ever could out of left eye. My left eye was almost completely blacked out and had been since I was affected with LHON in 2004. I closed my right eye last night and could actually see the tv with just my left eye. I don’t know about these eye pain days but it seems more and more after I have these days of intense I pain, my vision opens up even more. I leave for Bascom Palmer Eye Institute on July 8th and am excited for my test to see how much better my vision is now compared to when I went in January. I’ll post the results when I get back. I haven’t received the results of my liver function test but since they haven’t called yet I bet my liver is just fine!